Duchenne, or Duchenne muscular dystrophy (DMD), is one of the more common yet severest forms of muscular dystrophy that almost exclusively affects boys, who are usually diagnosed between the ages of three to six. Most affected boys suffer from progressive muscle weakness that necessitates power wheelchairs. Many do not live past their mid-twenties.
Founded in 2003, CureDuchenne is the world’s leader in the search for a cure for Duchenne. In its first year alone, CureDuchenne raised $1.3 million in donations for research, including a $250,000 gift. Over time, the once small-scale organization has redefined the level of care for families, built a community for all those impacted by Duchenne, and funded the first-ever FDA approved drug for Duchenne patients. As of 2018, CureDuchenne’s portfolio includes 16 wide-ranging projects with four successful exits. Combining traditional fundraising with venture philanthropy, CureDuchenne has provided seed funding that has leveraged more than $2 billion in follow-on investment from venture capital, biotech, and pharmaceutical companies to fund research. More information can be found here: www.cureduchenne.org
A skilled relationship builder, CureDuchenne’s first National Director of Development will identify, qualify, solicit, and steward strategic gifts to support biomedical research support and funding. This dynamic, entrepreneurial donor strategist will provide overall direction for CureDuchenne’s national major and principal gifts programs that help to ensure the advancement and vitality of CureDuchenne. This position reports to CureDuchenne’s CEO and Founder. The National Director Development is expected to generate from the portfolio at least three to five major gifts in the first year, with a goal of raising at least $2 to $3 million annually within the next three years. Ideally based in Newport Beach, California, this position may also be based remotely in the following metro cities: Boston, New York, Austin, Dallas, or Houston.
The ideal candidate must bring a minimum of five to seven years of successful fundraising experience in managing high-level donor and prospect relationships with a proven record of soliciting major gifts at the six-figure or greater level. Experience fundraising in a healthcare-related environment would be an advantage. This individual must be a collaborative, energetic, self-starter with the ability to partner closely with sophisticated, affluent donors and investors. A bachelor’s degree from an accredited university or college is required.
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